Wish Trump would address FDA....The experimental drug trial for Nusinersen (Spinraza) by Ionis Pharmaceuticals and BiogenCameron Progress update nov 2016.More amazing progress in Cam's fight with SMA type 1.The experimental drug trial for Nusinersen (Spinraza) by Ionis Pharmaceuticals and Biogen has far exceded what we dared hope for. FDA needs to approve this drug fast!He gets his work ethic from Alison Harding , She is the driving force behind his success. Cam's entire day is training and therapy. Standers, Gait Trainers, PT, OT, Speach, Swim, etc. Just a amazing Mom!www.facebook.com/groups/Hope4Cameron#TheFastMovement #Noquitinthiskid #kingcam #workethichttps://www.facebook.com/theFASTmovement/posts/1729678484018961Nov. 17th, 2016 Post:We are nearly weeks, possibly days away from the FDA approving the drug Cameron has been on since February 2014, at 7 weeks old.We are so excited about this drug being available to all children and adults effected with this disease, especially the type 1 babies that are so severely effected. Its hard to believe looking at this video Cameron was unable to move his head, legs and arms. It feels almost surreal that we have come this far. It hasn't been...https://www.facebook.com/groups/hope4cameron/How many kids died since 2014 that could have been getting this therapy?
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